Diane Neas

Say Her Name Please

I had a moment today, the kind that brings you to your knees, while I was at work. I am pretty sure I hid it well as no one asked me if I was ok. In truth, I physically stumbled as images tumbled through my mind. One connected to the next . . . going in and out of focus so quickly it made me feel nauseous. A sweet memory of a three year old Becca followed too quickly by the truth that she is dead. Nearly every thought a grieving mother has is punctuated by the truth of their child’s death.

When my daughter was three I rushed her to the doctor with a horrible rash around her mouth. I was frantic to find out what had caused it and if she was in serious danger! Had she eaten something poisonous? Burned herself somehow? Nothing made sense but I knew the circular red rash around her lips had to be examined. I remember crying in the waiting room as my toddler looked up at me with concern. Sweet girl . . . she was worried about me when she was the one who was sick! This made me cry even harder.

As the doctor examined her face he asked me questions. Were all the cabinets child proofed at home? Had she been left alone for any amount of time? Did we have a pet she might be allergic to? Was there a fall recently? None of those things were a factor in her condition. Then I remembered something. Relaxing a bit I shared it with the doctor.

“That explains it then,” he said, “your daughter has given herself a hickey around her mouth!”

The night before, Becca had been in the tub playing. Toys floated around her, and so did the cup I used to rinse her hair after I’d washed it. I’d often read, sitting next to the bathtub, while she played. At one point, I’d looked at her and she had the rinse cup suctioned onto her face, over her chin. I laughed at her and told her she was being silly! I also told her not to drink any of the bath water but I’m pretty sure she did.

Relief flooded me when I realized what had happened. After her nightly bath, I’d tuck her into bed under her Care Bear blanket, and say good night. The hickey must have darkened somehow, or I didn’t notice it in the dim light, either way . . . it wasn’t apparent until the next day. And then, of course, I panicked.

The image of my beautiful little girl with the creamy skin and red raspberry mouth and chin flashed into my mind today, out of nowhere. I don’t know what caused this memory to shake loose and float to the surface this afternoon. The happiness that was attached to the image, and the reminder of the relief I felt years ago hearing she was going to be alright, swerved into devastation when I remembered that not every situation turns out this way. I can no longer trust that “everything is going to be ok” because that last time . . . it wasn’t.

The days when I could see my children tucked snugly into bed, under my care, safe from the world are gone. No more can I kiss their boo-boos and make them all better. Kisses can’t fix some things. Moms should be able to make everything better, always. We know we can’t. And sadly, bereaved mothers have the proof.

Today’s experience of having the memory and following it to the end was a quick process. Bam, bam, and boom. She was three, beautiful, and full of giggling life. In seconds, she went from a toddler to my deceased daughter. I felt like a tennis ball, lofted into the air to be slammed back to the ground almost immediately. Soaring for a few exquisite seconds. What incredible seconds they were.

It’s like that though, as I said earlier, every memory is ended with the period of their passing. Thoughts all end the same. With identical punctuation. In grammar, a period is defined as being “placed at the end of a declarative sentence indicating a full stop”. My daughter wasn’t done writing the sentence the toddler in her had started.

And I wasn’t done reading her story.

When you think about Becca tonight, and I hope you do, please think of the giggling precocious little girl who smelled of sunshine and maple syrup. The small child who kept us all laughing. My daughter, the one who first taught me what true love really is.

Say her name for me . . . and smile.

Megan Leah

I often write about how different each mother grieves on the journey after the loss of a child. A few months ago I had been sitting with one of my oldest friends and we were discussing the loss of our daughters. Amanda, Mandy to me, lost her child when she was less than a year old in a freak auto accident. This was years ago, in linear time, but just like yesterday for her. While we were talking about different aspects of child loss visiting our child’s final resting place came up. She shared her truth with me and she has courageously agreed to share it with you, today.

I hope you, the reader, can take in her words without any judgement. Being open and willing to share some of the deeper aspects of our grief is very difficult and leaves us vulnerable. I am not anticipating any negative remarks from anyone I know . . . but if I read any, I will deal with it immediately.

I am sharing her writing today because it is Memorial Day. A day set aside for remembering those who died in active military duty, it’s become one in which we remember all of our loved ones who have passed. This is evident by the flowers, flags, and visitors who can be seen in nearly every cemetery. What follows is Amanda’s story about visiting her daughter’s, Megan Leah, grave.

This journey is tough. It’s not for sissies. The truths we have to confront along our way often brings us to our knees. I know, from experience, outsiders can not understand this. I was an outsider when my friend lost her precious baby daughter. I didn’t say the right things. I wondered if she was ever going to get “back to normal”. I have apologized.

I am eleven years into living without my daughter and I am exhausted. Amanda is over thirty years in and still finds a reason to laugh, to love, and has the strength to share a tiny part of a journey that spans decades.

Thank you, Mandy. For your wisdom, bravery, and laughter.

The following is a piece of Amanda’s writing about visiting her child, Megan Leah:

Ok, here we go. With the Memorial Day holiday around the corner I find myself thinking about how many people go to the cemetery to pay respect to they’re loved ones and lay flowers down. I won’t be one of those people.

When my six month baby girl Megan Leah was killed in a car accident back in 1985 I found myself thinking about the one thing that us grieving mommy’s won’t say out loud let alone say it to someone else. My child is 6 feet underground decomposing.

The physiological changes our precious children will go through. It’s not something I want to think about but, if you’re completely honest with yourself you do think about it. How can you not?

For a few years I did go to the cemetery to lay flowers at her grave and sat down to talk to her. Then after awhile my thought “went there”. I refused to go NO MORE! My sweet, chubby baby girl was down there withering away bit by bit and I couldn’t deal.

In my faith I know Megan isn’t really there at the cemetery. She is in my heart and soul. I will always have her all around me. Some people along the way have asked when was the last time you were at the cemetery? I tell them years. They look at me like I’ve lost my mind. They’re right I have lost my mind! My baby was viciously taken away from me and I don’t want to go to the cemetery and have that vision of her decomposing in the ground that I’m looking down at.

So, whether or not you go to the cemetery to honor your child is your choice and I won’t judge you for it. But, I’ve already made mine.

Her Angel

I often wonder if bereaved mothers judge themselves more harshly than the average person does. We can be pretty ruthless when noticing our own behavior.

Are we mourning correctly? Too much? Or, the right amount? Not enough? Did we laugh too soon? More often than we should? Are we supposed to go on the vacation we already had planned? How long is it appropriate to wear black? Should we mention our child when no one else does? How do we know if we are grieving the loss of our child appropriately?

First let me say this: someone . . . somewhere, will have a nasty comment to make about how you are surviving in the aftermath of loss. The remarks usually start with “Did you see . . . “ or “How could she . . . “ or “Isn’t it time that you . . . “. The last comment is the one that really gets me because all too often it comes from someone who hasn’t buried one of their children. But this blog isn’t about the insensitivity or lack of knowledge that outsiders seem to bring to us. This piece of writing is about how severely we can judge ourselves.

Monday morning, Stacey and I were having breakfast before a meeting I had for an art show. Sitting in a local eatery, we were chatting about what was on the TV and probably making inappropriate comments about one thing or another, when she started to scroll through her emails.

“Oh”, she said,”here is one about the scholarship.”

She then proceeded to share with me the particulars of the letter. A memorial scholarship has been started in Mckenna’s honor and the first one was presented this year. A 2018 graduate, who is furthering her education in theatre and music was awarded the scholarship. Mckenna was quite gifted in music and acting and Stacey wanted to help further someone else’s dream because she can’t help Mckenna achieve her own.

Stacey said, multiple times, oh that’s lovely. Oh, how wonderful. I’m so happy. Which I am quite certain she was . . . but with the acknowledgement that this girl received the honor to further her dreams it was a reminder to Stacey that her daughter won’t. This scholarship only exists because Mckenna was killed and there is no way to get forget this fact. So, in the middle of the restaurant, Stacey started to cry. And then what did she do? What we all do. She apologized.

I don’t remember her exact words but they were something like: “I’m sorry. I think I’m doing good and holding it inside and then all of a sudden I’m crying.”

That statement holds so much heartache. There is the surface sadness, the sadness we expect when we’ve lost a child, but there is so much more mixed in there as well.

“I’m sorry.”

For what? You have no reason to have to apologize to anyone. Ever. Crying is expected. Tears are natural. Everyone cries. Please, don’t say you are sorry. Cry when you need to. No explanation is needed to anyone. Tears are a healing necessity on this path.

“I think I’m doing good and holding it inside and then all of a sudden I am crying.”

Holding it inside is “doing good”? By whose standards? In saying that holding it in is doing good it implies that letting it out is doing bad. Why is that bad? We’ve been conditioned to believe emotions are troublesome and shouldn’t be shared. Being sensitive is seen as a fault. Somehow, society has morphed into a space where we have to keep what is considered “extreme emotions” hidden away. I think this is a huge mistake. It removes us from one another.

But, back to how we judge ourselves in context to how we behave in grief.

Stacey and I have talked endlessly about nearly every aspect of mourning the loss of a child. We always agree that our culture sucks when it comes to both actively grieving and interacting with others who grieve. Both of us think part of our “mission” is to spread awareness about child loss and parental bereavement. When we see another mother crying . . . we understand why. We are compassionate. There is safe space. We can extend this to another, knowing it is what the mother needs, yet we can’t seem to offer it to ourselves. I know Stacey would sit with me for hours, if I wanted her to, so I wouldn’t be crying alone. I would do the same for her. And, there would be no reason for an apology or even the slightest thought that the other was failing. Yet, again, we don’t offer that kindness to ourselves.

It seems we can talk a good game, in theory, but it’s putting it in practice on the playing field where we falter. We still think we are putting others out when our grief overwhelms us and spills into the moment. How do we change societal views when we have trouble changing ourselves?

I guess it’s in small steps. One tear at a time. We didn’t learn to live without our child in one afternoon. Or in a year. Hell, it’s been a decade for me and I still don’t know how. We do the best we can in the smallest of moments.

All judgement has to stop. The judgement from “outsiders”. That which grieving moms have for each other at times, and especially the thoughts in which we hold ourselves up to an impossible yardstick. My way isn’t your way and vice versa. And it shouldn’t be.

Find your way without faulting yourself for the little moments of the journey. Let others find theirs. We are all heading in the same direction, like a spoke of a wheel, toward the center of spirit and healing. Be kind to each other.

Be kind to yourself.

Note: The featured image above is painting Stacey Hilton did of herself and her angel daughter, Mckenna. I’d like to thank her for allowing me to share her story and her pictures in my writing. It adds a dimension that I couldn’t share on my own.

Again?

Three days ago I posted a blog entry about happiness. I must have been having a good day. With this piece, you will see the path of grief for what it is . . . a non linear journey. As we travel along it’s path, we traipse back and forth over ground we’ve covered dozens of times. It can’t be helped. Nothing is ever healed completely.

Another blogger read my last piece, “When She Laughed”, and left me a comment on my site. She stated that she liked the fact that I was optimistic in what I’d written about happiness. In a reply, I was careful to state that I didn’t want her, or anyone else to think I started my grieving feeling this way. Instead, I started it mad and sad and angry and jealous and bitter. Very little happiness or optimism was involved. I am always fearful that someone who is struggling may think somehow I am doing it right and they are doing it wrong. I don’t ever want to add more weight to an already heavy existence.

Especially, the feeling of failure.

But when I wrote that reply, yesterday, I was still having a good day. It was upbeat and light. I still felt happy. So many things are looking positive in my day to day life. Both of my boys are happy and doing well. There is a move in my future. My art, my writing. I’ve made big decisions that I feel confident in. A handful of people have told me that they are thrilled to see my eyes sparkle again. “You’re so happy!” they’ve commented to me.

Then today dawned cold and rainy and grey. And, magical because of a wedding happening an ocean away. I am not a royal watcher. I didn’t wake up extra early, bake scones, brew tea, don a whimsical hat, and settle in to be a part of the history making nuptials. I honestly don’t care enough to go out of my way to watch an American become part of the British royal family.

Yet, when the highlights played across the screen this evening I watched a few short minutes of the affair. What stuck with me was not the dress or guests. It wasn’t the fact that an actress from the USA became a duchess in England with the words “I do”. Or that so much of what transpired was breaking from tradition. None of that. What caught me off guard was the look on the groom’s face as he watched the woman he loved draw closer to the altar. His face softened when he caught sight of her. He appeared to be utterly mesmerized and completely in love with his bride.

All I could think about is the fact that my daughter will never have the chance to be looked at in that manner. And it is fucking heartbreaking to me that this (and so many other experiences) were stolen from her by someone who was irresponsible. By someone who decided drinking and driving was his right. By a young man who thought a boozy Saturday night took precedence over the safety of anyone else.

As easy as that . . . the happiness evaporated. I felt as if a balloon had deflated because of the piercing truth of my daughter’s death. Because of the enormity of the years, and experiences, she’s lost.

I’m moving nearer the lake. Who the hell cares?? My art seems to be taking off, in some regards, but what’s the use in pursuing it? What I write . . . does it help me or anyone else? Who knows. Nothing major changed in my life today, yet, everything changed in my life today. Nothing else really matters because my child is dead.

The hopefulness skittered away as quickly, and completely, as a cloud passing over the sun and plunging the world into darkness. There and gone.

I guess I am trying to illustrate two points here:

Even after eleven years, and some very deep healing, I still experience the emotions I felt initially following Becca’s death. I am treading over ground I have covered many times before. No one is immune from these circular situations that spiral us back from where we’ve been. Expect it. It happens to all of us . . . no matter where we are in our grief journey.

We heal in little pieces. A stitch at a time. But, not all soul sutures are strong enough to withstand a violent blow. I am not going to chastise myself because I did a u-turn and headed back into a place that I’ve been so many times before. I have a right to be sad for my daughter’s losses. And, for my loss.

So, yes, I will have good days but I’ll also have shitty days. That’s my lot in life now. I imagine I will always vacillate between emotions and this will irritate some people. They want us to be better. To hurt less. And, as quickly as possible. That’s just not going to happen.

Feel happy when you can . . . and embrace the sadness when you can’t. These emotions are critical to healing. Sadness is necessary.

The featured image above is from this past Tuesday when Stacey and I were in Muskegon. A bunch of dandelions growing between a sidewalk and a wall. Joyfully yellow with their heads turned toward the sun. They are beautiful because they exist in a place that isn’t very hospitable to greenery. We exist in a condition that isn’t amenable to complete happiness.

But we can give it our best shot each day to find some happiness among the tears.

When She Laughed

As I was getting ready to sit down and write a blog my eyes swept across a picture I keep on a table in my bedroom. It’s a photograph of Becca and I laughing hysterically, while sitting next to each other, at a friend’s going away dinner. The moment is embedded so deep within my memories that I can feel her sitting to my right and telling me a wildly inappropriate joke. That daughter of mine was hilarious! She never failed to make us laugh!! And, we laughed a lot. I miss her laugh.

Being a single mom I couldn’t always afford everything we needed. So, once in a while, I had to let a bill slide. Generally it was the cable bill because it wasn’t a necessity. I remember one of those tv-less nights when we were all tired of board games and were just sitting around. Becca jumped up and started to act out scenes from her favorite movie, “Clueless”. The boys and I were entertained for at least an hour while she acted and re enacted the scene where one of the girls gets hit in the head with a shoe. Every time Becca fell to the floor the boys would squeal with laughter! Which just made her fall more theatrical the next time. After that we would often turn off the TV and shout out scenes for her to act for us. I would give anything to go back to those times. The four of us safe in the house and in love with each other and life.

I have a few questions for grieving moms. Do you remember the day the laughter stopped? Did it die with your child? Were you, too, sure that you would never laugh again? And, when you did, were you disgusted with yourself? Was there shame?? Is there still shame and guilt if you’ve found laughter again?

Laughter. Such a normal, and necessary, part of human existence. It comes from sensations of joy. Joy: delight, pleasure, happiness, glee. I am willing to bet that joy disappeared immediately from your emotional condition when your child died. As did laughter. For me it did. I never imagined myself laughing again. And . . . I didn’t for a very long time. Which was, among other things, very unfair to my surviving children. It was also unfair to me and her memory.

Everyone who knew Becca still remarks, to me, about her laugh. It came from her belly and was loud and she was unapologetic for the noise. Her laugh made me laugh. It’s true, it’s contagious. And a wonderfully beautiful thing!! We don’t laugh enough, us grieving moms, for various reasons.

How can I laugh when my child is dead?
There must be something wrong with me to be able to feel joy.
Do I love my child as much as I think I do because if I do I should be beyond repair and unable to find happiness without them.

The reasons we don’t laugh are as varied as each of us. Though there is some commonality in the experience, each of us must find a reason to laugh again.

The dictionary defines joy as follows: the emotion evoked by well being, success or good fortune or the prospect of getting what one desires. NONE of those pertain to our situation after child loss. Yet, we must come to a place where we can feel some of what is listed above. But why?

Our grandmothers had it right when they told us that laughter is the best medicine. There are so many physical benefits to a good chuckle. For one, our immune systems take a dive when we are thrust into bereavement. In that first year after my daughter was killed I had diarrhea continually. Constant headaches. Little sleep. My body was physically going through grief, too. A good laugh can help strengthen our immune system, release tension and anxiety, make us feel more positive and hopeful. Laughter can help diminish pain and protect us from the damage that stress from losing a child puts on our systems.

Laughter relaxes the body.
Laughter lightens the heaviness of anger. (and boy do we feel anger)
Laughter triggers the release of endorphins.
Laughter protects the heart. (our broken hearts need all the help we can find)
Laughter strengthens resilience.
Laughter shifts perspective.
Laughter bonds people to each other.

Stacey and I laugh. A lot. Probably more than we ever thought we would be laughing again. I think we are learning that though we find a reason to giggle . . . the sadness never goes away. It’s takes a while, but you can and hopefully will, find your way to laughter again. It is a necessary part of life and a large component to healing from the loss we’ve experienced.

If none of the reasons in the list above are enough for you to find your way to laughter again, how about this one:

Your child would want you to laugh.

Don’t you think so?

I know when it’s my time to join my daughter . . . my sons are going to be heartbroken. They will mourn my passing and grieve the loss of their mother. But I hope, with all of my heart, that they can remember how much we laughed and find a reason to laugh again. I want them to.

My daughter would say to me: laugh mom. Laugh because I laughed. Because I existed. For the boys. But mostly, for you. I want you to be happy.

I remember a story I heard about Jesus in the garden with the children in Heaven. He invites them all to join him in a walk. Gleefully, they all get up to follow him except for one little boy. Jesus asks the little boy why he isn’t coming along. The boy responds that his mother is crying and he is worried so he has to stay and look out for her.

Hearing that story made me think of how horrible it would be to have my daughter, with the entirety of heaven and space at her fingertips, won’t enjoy it because I am keeping her anchored to me. Anchored to me because of my sadness.

Don’t let your child’s legacy be one of continued and complete sorrow. What a horrible thing it would be for your life to end when your child’s did. It takes so incredibly long, and a lot of inner emotional work, to come to the place where you celebrate your child’s life with laughter. But, I know you can do it.

Find a reason to laugh today. I know our children rejoice when we do.

Ordinary Days

The past few days my thoughts have particularly active in my head. This is nothing new for me. I seem to go through “dry times” when I can’t put enough words together to make a coherent sentence let alone write a blog! I often doubt, during those times, if I’ll ever have anything worth saying again. Maybe I have used up all of my words. Or, thought of everything I can think of. Weird, I know. I think it’s a writer’s thing. After time passes, the floodgates open and new thoughts and connections come tumbling to the forefront. All at once.

I carry a small notebook with me everywhere I go because I learned the hard way that not all thoughts resurface. Some of them come but once and if you don’t catch them you’ve lost them forever. I know I’ve let, what I consider gems, slip through my fingers. Hence, the notebook. I mean, if spirit is going to send me words then I damn better receive them!

Thursday, Friday, and especially today, the gates opened and the thoughts that have been forming flowed full force into my notebook. The half dozen different ideas, on the surface seemingly very different, all connected beautifully . . . each a pearl strung on the same cord. I am amazed when this happens.

In my apron pocket, at work, was the small yellow notebook covered with butterflies. In between customers I scribbled my thoughts onto clean pages. I filled up three of them. On the drive ,I let my mind nibble on each, trying to choose one for tonight’s writing. I thought I’d chosen one, pertaining to tomorrow, Mother’s Day. Upon arriving home, instead of writing, I decided to work on an art project I am entering into a local contest. The featured picture above this blog is a photograph of the project thus far. I am creating an image of my daughter in heaven.

As I was applying the plaster to the area which is the angel’s dress . . . I froze.

With a different past . . . in another future . . . this could be my daughter in her wedding dress.

The thought, the loss, what was taken from her, from us all . . . came crashing down on me like an avalanche. As I cried, but still continued on making her gown, this blog came to me nearly complete. I won’t be writing about Mother’s Day in the way I had intended.

Instead, I will be sharing my thoughts on the anguish held in ordinary days.

Tomorrow is Mother’s Day. I know far too many women who will be barely surviving while they miss their deceased child. The pain, especially on days like this, is just to immense to be able to describe adequately. We try to find a way to make it through the day. So, we are told to make plans. Make a plan that doesn’t leave us alone. Make a plan to have someone check on you if you insist on being alone. Make a plan to visit your child’s grave, if you want, or a plan to volunteer somewhere. The most important plan is the one we have that saves our lives if it all becomes too much.

With so much emphasis on how we are going to maneuver these harrowing hours on milestone days we are unprepared for the ones that hit us in the ordinary days.We don’t see them coming until they are upon us. We are caught off guard. Our defenses are down. We don’t expect to be blindsided so when the blow lands it’s crushing. Today, for me, was one of those very ordinary days.

I often think of my daughter when I am creating. Even when the subject matter is not how I view her in heaven. When I am holding a paintbrush my mind is calm and she drifts back and forth through all of my thoughts. Today, the art and real life collided in a way I hadn’t expected. And I lost my balance.

I guess the message I hope to share in this short blog is to tell other grieving mothers to prepare as much as you can to survive the “big days”. But also keep in the back of your mind that the very ordinary moments, we all experience, will be just as painful. Actually, maybe even a little more. Our feet are upon a very difficult path, our footing is not always stable, and we are easily toppled. Expect to fall.

To those who love and support a bereaved mom: Expect her to fall. Just help her get back up, please.

She will need you again and again.

Especially on the ordinary days.

Moving Toward The Storm

One of the things I love about my state of Michigan is the thunderstorms we get in the spring. Because of Lake Michigan the weather can become severe as it blows onto the shore from the west. This makes for heaving thunder and lightning when things really get stirred up!! I don’t know about you . . . but storms affect me on a spiritual level. There is a feeling of release as the sky flashes and rumbles, and then, a cleansing when the rain falls in heavy drops onto the land. I find the storms both invigorating and calming.

I live nearly forty miles inland from the lake. Sadly, often times the storms will have lost some of their power as they reach Grand Rapids. About an hour ago I heard the meteorologist break into “regularly scheduled programming” to announce an impending storm. A thick line of orange and reds slashed the left side of the state map. There was even mention of a curve in the radar. This would be our first big spring storm and I was excited. Except about the lightning. That scares me. But that is another story for another blog.

Wanting to be able to concentrate on the incoming weather I came up to my room. (For full disclosure let me say I did go downstairs and sit by Stacey so the lightning couldn’t find me.)

Alas, as it usually does, the storm I was hoping for hasn’t materialized. Then I thought: in less than a month (hopefully) I will be living about ten minutes from the big lake and I will be able to see the storms, now in full force, as they blow into Muskegon. How lucky I am!! Then this brought me to another thought: I am moving from a city I’ve known for most of my life to one I’ve not spent much time in.

What’s interesting about this is I am moving toward something instead of away. This is huge for me. It’s also an important distinction for bereaved moms who are contemplating a relocation. Years ago, my counselor called it geographical therapy.

I had been sharing with him how I would plan my driving routes around certain areas of the city because they were too difficult to see. But then, there were the days I purposely drove through the painful streets because I needed to physically see a place Becca had been. To prove to myself that she had, indeed existed, once upon a time. During that particular visit, I had told him I just wanted to move out of the city that was haunted with my daughter’s ghost. No place, I’d said, was far enough. I wanted to run away. I didn’t understand that everything would follow me. You cannot outrun grief.

Late last year one of my sons learned this lesson, too. He was in Europe, Spain to be exact, and he found himself being overwhelmed by emotions surrounding his sister’s death. He even said the words: it doesn’t matter how far I go because it all comes with me. How right he was. He cut his trip short and came home to work through some things. Which I am very proud of him for doing.

Eleven years have passed since Becca was killed. Any move I might have made before this point would have been one of putting distance between myself and my grief. Now, I feel ready. The move is very positive and I think it is just what I need. Yet, there is trepidation.

Though seeing remnants of my daughter everywhere can be painful . . . there is also a comfort to these images. Physical places can be anchors and seeing them can help keep me grounded. On the days when it seems she was my most beautiful dream, and I am not sure she really existed, I can go to place I know she was and prove to myself that she was alive once. I need that.

My life will be completely different in Muskegon. I feel a bit guilty that I am leaving my child’s world and going to one she never knew. As if, somehow, I am erasing her from my everyday life. I’m not, I know that . . . mostly.

I’m not leaving her. Or erasing her. I am adding to my life. Enriching it with new experiences and surroundings. Fulfilling a lifelong dream to live near Lake Michigan.

And I know she is coming with me.

Just F!ck.

First, I’d like to issue a warning about this blog. I’m irritated and my words may include some strong language. This happens now and then. It’s happening now.

I follow quite a few “pages” on Facebook. Often there are shared posts which are meant to be inspirational. The “me” I was before my daughter’s death would have, undoubtedly, found motivation in their musings about love, life, and the world. The “me” created by her passing isn’t so positive they are completely true. Furthermore, I believe they can only be true for those who have not lost a child.

A few days ago, I ran across just such a post. I won’t share it in its entirety here . . . but I’ll share the lines that gave me pause:

“And then it happens. One day you wake up and you’re in this place. You’re in this place where everything feels right.”

It goes on to explain how you will be at peace with all you’ve been through . . . everything you’ve experienced.

It’s not as often as you think that I comment being that I am a writer. My replies are not as snarky as they were when I was newly bereaved. I was deeply hurting and could not see anything positive, anywhere. I’m willing to concede this might be the case, today, as well.

After reading the meant-to-be uplifting words pertaining to life’s journey that brings you through hard times . . . I had a genuine question. Can we all reach this place? This place I envision as balancing atop the crest of mountain, seeing all that was and all that will be, down below? Where the air is pure and the sun warm and everything in its appropriate place? So, I added a comment.

“I wonder if someone who’s lost a child can reach this. It’s a great concept but sadly I don’t think everyone can reach this place.”

As you can imagine, there were many who replied, and too many who didn’t quite understand. Two replies irritated me much more than they maybe should have. One of them is on my list as to what to never say to a grieving mother: Time heals all wounds. No it doesn’t. Some wounds never heal no matter how much time passes. I know the person saying this is trying to help us but they aren’t.

The second comment that pissed me off is one I’ve not heard in the eleven years I have spent as a grieving mother. I believe my exact response upon reading it was: you’ve got to be fucking kidding me. Believe me, it was not because I was elated someone had finally given me the secret to healing from the pain of child loss (if only).

More so because the one word thrown at my question was “willpower”. Willpower! Is that the answer, Christine L. from Doesn’t Matter, USA? All I need is willpower?? Why didn’t someone tell me this sooner!! Holy shit!!

When I’m cradling the marble urn holding my daughter’s ashes I’ll just put it down and sternly tell myself to have more willpower in letting her go!! Each night, as the tears fall onto my pillow I’ll remind myself that all I need is a little more willpower to stop my crying!! As dawn breaks, and I am having difficulty forcing myself out of bed to face another day in a world that doesn’t hold my daughter anymore, I’ll chastise myself with the reminder: All you need, Diane, is more fucking willpower!! Stop being a little bitch!!! Pull yourself together . . . you can will all of this pain away!! Next time I reach for Becca’s baby doll to hold, because I can not hold her anymore, I’ll be strong and turn the fuck away. And in following your answer I will be turning toward happiness, no?

You know what Christine L. from Doesn’t Matter, USA. fuck your comment. Do you want to know why I say fuck your comment? Please, allow me to tell you.

The definition of willpower is: control exerted to do something or restrain impulses. Which part of this definition, Christine, should a bereaved mother use? Hmmm, let’s see . . . should I control my mind in a way that continually turns my thoughts toward happy things? Yes? Alright, I’ll choose a happy memory from my child’s life (ended too early) and concentrate on that!! When the sadness starts to seep into the image I’ll just tell it to go away. How’s that? Fucking brilliant, Christine!! Or maybe, I’ll use the latter part of the definition and restrain myself from from running my hand across the plaster mold of her’s. Just will myself to turn away from that which both give me comfort and causes me pain. Yes?

Let me tell you this, Christine, being alive fucking causes me pain. Her existence came through me and is in me. Attached to every happy memory there is now a sadness that accompanies it. Therein lies the reason I made my comment in the first place. Can we find a place where everything is ok. I doubt it.

We are alive . . . but we are dead.
We are here . . . yet absent.
When we laugh . . . we cry.
Grieving mothers walk in two worlds.
We are the ghost of our former self.
We are the keepers of our deceased children.
We exist. We fucking continue to exist.

So, Christine L. from Facebook, you are fucking wrong. Willpower is for putting down a donut, not healing from our pain. (Thanks for that line, Stacey) Willpower is used to exercise more . . . not for finding happiness after losing a child. Don’t add more guilt to an already monumentally difficult journey by cheapening our experience with a your fucking ridiculous single word answer. If healing were that fucking easy . . . I’d be in the place the initial post spoke of.

I will say this: I used willpower today in not telling Christine to go fornicate with herself. And, it wasn’t easy.

But, I did it.

Caring For Ourselves

It is important that bereaved mothers take time to wash their hair.

In the past I’ve shared why it’s important for grieving mothers to do so much for others. Though I can not speak for everyone, I will say, most of those I have talked to have agreed it’s something we are compelled to do. Of the half dozen moms who have lost children, in my “real” life, each one has found a way to make the world a better place. The few who haven’t are still searching for what will be the right fit to do in memory of their child.

The reasons we do this can be as varied as each mother herself. From nonprofits to help children in need or to providing free clothing to those who are without all the way through to scholarships given at the deceased child’s high school. We must “do” something.

We know the world can be a very ugly place. The truth of what can happen to our precious child(ren) is real in our lives. We’ve experienced it. Having been (and being) at the very depths of despair and hopelessness we are more attune to those who are hurting. We can see it in their eyes. Hear it in their voice. Their struggle isn’t lost on us. This is something we can (maybe) help make better. So, we try.

There is also, in us, a burning need to make sure our child is not forgotten by the world that keeps moving forth. Eventually, our family and friends move back into their normal routines. Often times, when the third or fourth death anniversary (or birthday) passes by . . . very few reach out to us to say “hey, you and your child are not forgotten”. Realizing this is a slicing pain through our already fractured heart. When we do things “in our child’s memory” we keep their name more current in a world that seems to be erasing them a little at a time. Good acts that our child would have done had they lived.

Often times, though, we give at the expense of ourselves.

I am not sure why we lower ourselves on the list of “to do’s”. For myself, I know I didn’t think I deserved to be alive. I was an old 42 when Becca was killed. She was a much too young 23. I’d lived more life than she would ever have a chance to experience. I had children. She won’t ever know the joy of holding her brand new baby. I had a wedding. My beautiful girl won’t be nervous as she walks the aisle to her soon to be husband. I had lived plenty of years and I didn’t need anymore . . . she did.

When we don’t think we deserve anything we don’t take care of ourselves. Are we punishing ourselves for still being alive after our child has died? I am often ashamed that I managed to survive her death. My inner dialogue is this: how can you be happy? How can you laugh? A loving mother would have died, herself, from the heartbreak. You don’t deserve happiness.

Many times, we think nothing matters. Worrying about clean clothes seems ridiculous to us when our child is gone. Shortly after losing Becca, my cousin Tammy called me. She was distraught and asked why we bother to do the right thing when it’s all a game of chance in the end. I didn’t have an answer for her. I still don’t have an answer as to why. But, I do know we are worthing caring for.

Quite recently, a dear friend of mine overextended herself with a promise she made to four girls. Even though she knew there was very little hope of fulfilling the promise she tried her damndest. For days I watched her run herself ragged trying to provide what she said she would. I was pretty sure it wouldn’t come to fruition but I knew she needed to try. She could barely stand up straight but she kept working hard to give what they’d agreed upon even though the last girl she helped had stolen from her. Why? Because it’s what we do. We give, even if (and especially when) it’s at a cost to our own well being.

We have to be very careful that we don’t continually put ourselves in last place.

I thought I was doing pretty well in this respect. Turns out I wasn’t. Want to know what made me realize this? Ragged underwear. Old underwear I wasn’t able to throw away. They had no sentimental value (as if underwear could) but I kept wearing them anyway. While doing laundry with Stacey she made a comment about how we deserve nice things. I agree. But then I held up a pair of my very tattered underwear and she said: throw them away. You deserve better. And, she’s right.

Caring for ourselves has to be a priority. Giving all we have to others and saving very little for ourselves just makes this journey harder. Our souls can not heal if our bodies are neglected. Our well being, physical, mental, and spiritual is braided together. When we care for our bodies we care for our souls. The best thing we can do for ourselves is to care for our child’s mother. I know Becca would want that for me. And, I’m pretty sure your child would want that for you.

I threw the old underwear in the trash. Then, I took a shower and washed my hair.

If you are having a difficult time caring for yourself . . . try doing one small thing just for you today. Then tomorrow, add one more. You don’t have to stop “doing” for others . . . but put yourself at the top of the list.

With all you’ve been through . . . you truly deserve it.